Options & Advocacy for McHenry County, Inc.

The simple answer is: whenever you’re ready. You are your child’s greatest advocate and protector. It’s okay if you don’t have all the answers, or aren’t able to perfectly explain everything. You can still educate those around you about your child’s autism when you have the energy to do so. Check out our complete guide for examples and tips.

Teach and practice calming strategies with your child. Helping your child learn how to manage their emotions and reactions is very important. Teach your child different ways they can calm down and relax, such as:

• Deep breathing, counting to 10, using sensory toys (like squishy balls or putty), going for a walk, listening to music
• Build "relaxation time" into their normal routines and schedules
• Practice these when your child is happy and calm so that later, when they’re highly stressed, they can access these skills

For more expert tips, check out our meltdowns guide.

Your pediatrician might be able to administer screenings, but most general doctors are not trained to formally diagnose autism. They might refer you to a qualified diagnostic clinician which include: 

• Developmental Pediatricians
• Child Psychologists
• Child Psychiatrists
• Pediatric Neurologists
• Pediatric Neuropsychologists

Your experience might look different depending on the type of clinician you choose. Many families prefer working with developmental pediatricians. Others might work with a psychiatrist or another specialist to get a different perspective.

A formal ASD diagnosis, or a medical diagnosis, helps you get the support your family needs, especially within the context of accessing medically necessary therapies and services.

• Insurance Coverage for Therapies: Medically necessary therapies for ASD are often covered by insurance including, but not limited to, speech therapy, ABA therapy, and occupational therapy. 
• Financial Support: A diagnosis is required when applying for social security or disability benefits. 
• Plan for Care: A diagnosis helps identify your child’s support needs. For example, your child might need to develop social communication and self-regulation skills.
• Future Research: The more data we gather through evaluations, the more we can improve services for autistic children and adults.

Check out Autism Diagnosis: The Complete Guide for Parents for more information.

“Early Intervention” might be the provider’s way of describing services that they provide to babies or young children. However, it might also indicate that the provider is a vendor for your state’s publicly funded program. This means the services with this provider might be covered by your state! 

The first step in accessing these free services from your state is to get an evaluation. The evaluation will help the state determine what services your child qualifies for, if any. You can find your state’s local EI program by clicking here.

When you contact your local center, say “I have concerns about my child’s development and I would like to have my child evaluated to find out if they are eligible for early intervention services.” They will ask screening questions and arrange for an evaluation, which is provided for free.

Here are a few alternative options to consider:

• Cognitive-behavioral therapy (CBT): CBT helps by identifying and changing unhelpful thoughts and behaviors. It's useful for those dealing with social anxiety or difficulties. CBT addresses cognitive patterns and provides strategies to manage social challenges.
• Group therapy: Group therapy offers a supportive space where individuals can practice social skills. They can feedback from peers and a therapist. It allows interaction with others who understand and learn from each other.
• Play-based interventions: Play therapy or play-based interventions work well for younger children or those who learn through experiences. Play activities target specific social skills like turn-taking and problem-solving in a safe and engaging setting.

Even if a provider offers parent training, it may look different from one provider to another. For example, an in-home provider might conduct a parent training session directly following a therapy session with your child to help explain what they’ve been working on with your child. At larger organizations, you might have a support group of families who are dealing with similar issues.