Sick Kids need Involved People (SKIP) of NY - Rochester

The simple answer is: whenever you’re ready. You are your child’s greatest advocate and protector. It’s okay if you don’t have all the answers, or aren’t able to perfectly explain everything. You can still educate those around you about your child’s autism when you have the energy to do so. Check out our complete guide for examples and tips.

Teach and practice calming strategies with your child. Helping your child learn how to manage their emotions and reactions is very important. Teach your child different ways they can calm down and relax, such as:

• Deep breathing, counting to 10, using sensory toys (like squishy balls or putty), going for a walk, listening to music
• Build "relaxation time" into their normal routines and schedules
• Practice these when your child is happy and calm so that later, when they’re highly stressed, they can access these skills

For more expert tips, check out our meltdowns guide.

Speech therapy is almost always recommended for autistic children since many people with autism have difficulty with social communication. Even if a child is very verbal and says a lot of words, they might need to work on communication skills like: 

• responding to questions
• starting or ending conversation
• changing conversation topics
• using gestures like pointing
• understanding other people's body language 

Speech therapy is a big focus in early intervention for autistic children and is usually the starting place for recently diagnosed kids. There is a critical period in the brain for language development and so, it's really important to teach language and communication skills as early as possible, especially if there are any delays in that area. Your child will learn effective ways to communicate which will help them grow into more independent and confident individuals.

It might be obvious when a child struggles with speaking —they are very quiet, say only a few words, or don't speak at all.

Spot speech and language delays like a doctor here.

The goal of speech therapy is to help your child communicate effectively with other people across all environments. This may take the form of using gestures, simple signs, verbal speech, and Augmentative and Alternative Communication (AAC).

Some other common things speech therapists can help with:

• Nonverbal skills, such as signs or gestures
• Forming speech in a clearer way
• Communicating thoughts and feelings clearly
• Understanding and responding to questions
• Discerning facial expressions and their corresponding emotions
• Noticing and understanding body language
• Feeding and swallowing
• Stuttering

The occupational therapy process includes an OT evaluation before care starts. Here are the four steps your family can expect when starting occupational therapy:

1. Complete OT evaluation. An occupational therapist first identifies your child’s strengths and needs through a thorough OT evaluation, also known as an OT assessment or screening. You’ll answer questions about your child’s skills, and your child will most likely demonstrate their skills via hands-on activities with the therapist. Evaluations can last 30 minutes to a few hours.
2. Approve OT plan. The therapist develops a care plan with individualized goals and customized interventions based on your child’s needs. You can also share any specific goals or concerns before approving the OT plan.
3. Start therapy sessions. The therapist works directly with your child and your family, using various strategies and exercises to systematically improve areas of limitations and to build upon a child’s strengths. Some exercises your child might participate in are animal walks, obstacle courses, and therapy swing activities. Your family may learn strategies for supporting your child’s individualized needs at home, such as ways of supporting emotional regulation and sensory processing. The therapist may also recommend tools and techniques to use at home, in the community, or in the classroom to help your child succeed.
4. Monitor your child’s progress. Parents and caregivers can expect ongoing progress monitoring and communication to ensure the child is achieving their short and long-term goals.

Occupational therapy can also be provided virtually via telemedicine. Virtual therapy is a great option for families in rural areas who may not have access to in-person services, or for families who prefer to have therapy in their child’s home.

Virtual OT allows the opportunity for increased caregiver participation and understanding of a child’s strengths, areas of improvement, and generalization of skills in the child’s home environment. Virtual therapy also provides increased opportunities for caregiver and family education to support the child and the family based on each family’s needs.

Here are a few things you will want to discuss with a potential respite worker: (Keep in mind that the most important step is to observe how the respite worker interacts with your child and your family.)

• Do they have work experience with children with autism?
• How will the respite worker support your child in a group setting?
• Do they have concerns about taking this job?

Once you find a quality physical therapist you want to work with, here are a few things you need to know:

• There will be an evaluation. First, you can expect an assessment to identify your child’s areas of strength and needs. A physical therapy evaluation usually lasts 30 minutes.
• You’ll review and approve the care plan. The physical therapist will create a care plan, also known as a plan of care (POC), outlining the goals and strategies. They will review this with you and your care team before moving forward with therapy sessions.
• Physical therapy sessions will be fun. PT with children is designed to be enjoyable. The therapist will use strategies and exercises based on your child’s needs. Exercises might involve playing on large stability balls, obstacle courses, movement equipment, stretches, and other hands-on activities.
• Expect home exercises. Physical therapists commonly assign exercises to work on at home. Doing these exercises with your child outside therapy sessions can improve your child’s overall progress.