VOLUNTEERS OF AMERICA NATIONAL SERVICES - Rochester Rehabilitation and Living Center

Check out The Beaming Health Transition to Adulthood Action Plan! It's a customizable step-by-step guide that walks you through the most important actions you can take as your child transitions to adulthood.

If you’re not sure where to start, this article lists 6 types of housing to be on the lookout for. Your child’s school and other parents are great resources to find out about potential options. Local groups, like your area’s Arc chapter, autism society, or special needs groups on social media, are good places to find resources as well. For additional help, consider working with a social worker and/or case manager.

The occupational therapy process includes an OT evaluation before care starts. Here are the four steps your family can expect when starting occupational therapy:

1. Complete OT evaluation. An occupational therapist first identifies your child’s strengths and needs through a thorough OT evaluation, also known as an OT assessment or screening. You’ll answer questions about your child’s skills, and your child will most likely demonstrate their skills via hands-on activities with the therapist. Evaluations can last 30 minutes to a few hours.
2. Approve OT plan. The therapist develops a care plan with individualized goals and customized interventions based on your child’s needs. You can also share any specific goals or concerns before approving the OT plan.
3. Start therapy sessions. The therapist works directly with your child and your family, using various strategies and exercises to systematically improve areas of limitations and to build upon a child’s strengths. Some exercises your child might participate in are animal walks, obstacle courses, and therapy swing activities. Your family may learn strategies for supporting your child’s individualized needs at home, such as ways of supporting emotional regulation and sensory processing. The therapist may also recommend tools and techniques to use at home, in the community, or in the classroom to help your child succeed.
4. Monitor your child’s progress. Parents and caregivers can expect ongoing progress monitoring and communication to ensure the child is achieving their short and long-term goals.

Occupational therapy can also be provided virtually via telemedicine. Virtual therapy is a great option for families in rural areas who may not have access to in-person services, or for families who prefer to have therapy in their child’s home.

Virtual OT allows the opportunity for increased caregiver participation and understanding of a child’s strengths, areas of improvement, and generalization of skills in the child’s home environment. Virtual therapy also provides increased opportunities for caregiver and family education to support the child and the family based on each family’s needs.

Here are a few things you will want to discuss with a potential respite worker: (Keep in mind that the most important step is to observe how the respite worker interacts with your child and your family.)

• Do they have work experience with children with autism?
• How will the respite worker support your child in a group setting?
• Do they have concerns about taking this job?

You can get your child an AAC device a few ways:

• Add it to your child’s IEP. If your child has an IEP, you can request that an AAC device be made part of it, and that they always have access to it in school. (Some schools will allow you to take the device home, too.)
• Ask your child’s doctor. You can request an evaluation for an AAC device through your child’s doctor. This requires an evaluation, and your child’s insurance should cover part (or all) of the costs.
• Buy one yourself. Many AAC devices are just apps installed on regular iPads or a tablet. They can be a bit pricey, but getting insurance to pay for AAC devices can take a long time.