University of Rochester Medical Center – Golisano Children’s Hospital

1. Use visual aids. You can use picture schedules, videos, social stories, and other visual aids to show your child what to expect.
2. Take your child for a practice visit. This can be the same as the orientation visit, or it can be a “dry run” of an appointment where the dentist doesn’t actually work on your child’s teeth yet.
3. Bring items to fulfill sensory needs. Bringing your child’s favorite fidgets and toys so they can play during the appointment will be helpful.
4. Reduce unnecessary stress before and after. Reduce demands by wearing comfortable clothes, getting lots of rest, eliminating unnecessary activities (like grocery shopping — order for pick up!), and doing the things that relax your child. Your child will be able to regulate better when every day stressors are kept at a minimum.

Your pediatrician might be able to administer screenings, but most general doctors are not trained to formally diagnose autism. They might refer you to a qualified diagnostic clinician which include: 

• Developmental Pediatricians
• Child Psychologists
• Child Psychiatrists
• Pediatric Neurologists
• Pediatric Neuropsychologists

Your experience might look different depending on the type of clinician you choose. Many families prefer working with developmental pediatricians. Others might work with a psychiatrist or another specialist to get a different perspective.

A formal ASD diagnosis, or a medical diagnosis, helps you get the support your family needs, especially within the context of accessing medically necessary therapies and services.

• Insurance Coverage for Therapies: Medically necessary therapies for ASD are often covered by insurance including, but not limited to, speech therapy, ABA therapy, and occupational therapy. 
• Financial Support: A diagnosis is required when applying for social security or disability benefits. 
• Plan for Care: A diagnosis helps identify your child’s support needs. For example, your child might need to develop social communication and self-regulation skills.
• Future Research: The more data we gather through evaluations, the more we can improve services for autistic children and adults.

Check out Autism Diagnosis: The Complete Guide for Parents for more information.

Music therapy can take place in a variety of settings including schools, hospitals, the child’s own home, rehabilitation centers, and clinics.

A therapy session will vary from child to child, depending on the child’s specific needs. Before your child starts music therapy, their music therapist will develop a personalized treatment plan for your child. Depending on your child’s goals their treatment may involve singing, dancing, listening to music, playing an instrument, or even composing music.

Once you find a music therapist, the therapist will perform an evaluation to determine if music therapy is a good fit for your child as well as determine possible goals. The evaluation will be comprehensive and look at your child’s response to a variety of musical stimuli, including giving your child an opportunity to play with instruments or listen to a variety of music types.

Evaluations will vary based on setting. For example, private practice has a number of evaluation tools while schools typically use an evaluation tool called the SEMTAP (special education music therapy assessment protocol) that focuses on looking at a student’s IEP goals and how or if the addition of music aligns with their IEP goals.

The occupational therapy process includes an OT evaluation before care starts. Here are the four steps your family can expect when starting occupational therapy:

1. Complete OT evaluation. An occupational therapist first identifies your child’s strengths and needs through a thorough OT evaluation, also known as an OT assessment or screening. You’ll answer questions about your child’s skills, and your child will most likely demonstrate their skills via hands-on activities with the therapist. Evaluations can last 30 minutes to a few hours.
2. Approve OT plan. The therapist develops a care plan with individualized goals and customized interventions based on your child’s needs. You can also share any specific goals or concerns before approving the OT plan.
3. Start therapy sessions. The therapist works directly with your child and your family, using various strategies and exercises to systematically improve areas of limitations and to build upon a child’s strengths. Some exercises your child might participate in are animal walks, obstacle courses, and therapy swing activities. Your family may learn strategies for supporting your child’s individualized needs at home, such as ways of supporting emotional regulation and sensory processing. The therapist may also recommend tools and techniques to use at home, in the community, or in the classroom to help your child succeed.
4. Monitor your child’s progress. Parents and caregivers can expect ongoing progress monitoring and communication to ensure the child is achieving their short and long-term goals.

Occupational therapy can also be provided virtually via telemedicine. Virtual therapy is a great option for families in rural areas who may not have access to in-person services, or for families who prefer to have therapy in their child’s home.

Virtual OT allows the opportunity for increased caregiver participation and understanding of a child’s strengths, areas of improvement, and generalization of skills in the child’s home environment. Virtual therapy also provides increased opportunities for caregiver and family education to support the child and the family based on each family’s needs.

Once you find a quality physical therapist you want to work with, here are a few things you need to know:

• There will be an evaluation. First, you can expect an assessment to identify your child’s areas of strength and needs. A physical therapy evaluation usually lasts 30 minutes.
• You’ll review and approve the care plan. The physical therapist will create a care plan, also known as a plan of care (POC), outlining the goals and strategies. They will review this with you and your care team before moving forward with therapy sessions.
• Physical therapy sessions will be fun. PT with children is designed to be enjoyable. The therapist will use strategies and exercises based on your child’s needs. Exercises might involve playing on large stability balls, obstacle courses, movement equipment, stretches, and other hands-on activities.
• Expect home exercises. Physical therapists commonly assign exercises to work on at home. Doing these exercises with your child outside therapy sessions can improve your child’s overall progress.