University of Rochester Medical Center – Golisano Children’s Hospital

1. Use visual aids. You can use picture schedules, videos, social stories, and other visual aids to show your child what to expect.
2. Take your child for a practice visit. This can be the same as the orientation visit, or it can be a “dry run” of an appointment where the dentist doesn’t actually work on your child’s teeth yet.
3. Bring items to fulfill sensory needs. Bringing your child’s favorite fidgets and toys so they can play during the appointment will be helpful.
4. Reduce unnecessary stress before and after. Reduce demands by wearing comfortable clothes, getting lots of rest, eliminating unnecessary activities (like grocery shopping — order for pick up!), and doing the things that relax your child. Your child will be able to regulate better when every day stressors are kept at a minimum.

Your pediatrician might be able to administer screenings, but most general doctors are not trained to formally diagnose autism. They might refer you to a qualified diagnostic clinician which include: 

• Developmental Pediatricians
• Child Psychologists
• Child Psychiatrists
• Pediatric Neurologists
• Pediatric Neuropsychologists

Your experience might look different depending on the type of clinician you choose. Many families prefer working with developmental pediatricians. Others might work with a psychiatrist or another specialist to get a different perspective.

A formal ASD diagnosis, or a medical diagnosis, helps you get the support your family needs, especially within the context of accessing medically necessary therapies and services.

• Insurance Coverage for Therapies: Medically necessary therapies for ASD are often covered by insurance including, but not limited to, speech therapy, ABA therapy, and occupational therapy. 
• Financial Support: A diagnosis is required when applying for social security or disability benefits. 
• Plan for Care: A diagnosis helps identify your child’s support needs. For example, your child might need to develop social communication and self-regulation skills.
• Future Research: The more data we gather through evaluations, the more we can improve services for autistic children and adults.

Check out Autism Diagnosis: The Complete Guide for Parents for more information.

Music therapy can take place in a variety of settings including schools, hospitals, the child’s own home, rehabilitation centers, and clinics.

A therapy session will vary from child to child, depending on the child’s specific needs. Before your child starts music therapy, their music therapist will develop a personalized treatment plan for your child. Depending on your child’s goals their treatment may involve singing, dancing, listening to music, playing an instrument, or even composing music.

Once you find a music therapist, the therapist will perform an evaluation to determine if music therapy is a good fit for your child as well as determine possible goals. The evaluation will be comprehensive and look at your child’s response to a variety of musical stimuli, including giving your child an opportunity to play with instruments or listen to a variety of music types.

Evaluations will vary based on setting. For example, private practice has a number of evaluation tools while schools typically use an evaluation tool called the SEMTAP (special education music therapy assessment protocol) that focuses on looking at a student’s IEP goals and how or if the addition of music aligns with their IEP goals.

The occupational therapy process includes an OT evaluation before care starts. Here are the four steps your family can expect when starting occupational therapy:

1. Complete OT evaluation. An occupational therapist first identifies your strengths and needs through a thorough OT evaluation, also known as an OT assessment or screening. You’ll answer questions about you your skills, and you will most likely demonstrate these skills via hands-on activities with the therapist. Evaluations can last 30 minutes to a couple hours.
2. Approve OT plan. The therapist develops a care plan with individualized goals and customized interventions based on your needs. You can also share any specific goals or concerns before approving the OT plan.
3. Start therapy sessions. The therapist works directly with you, using various strategies and exercises to systematically improve areas of limitations and to build upon your strengths. If there are others part of your care team, the therapist may teach strategies for supporting your individualized needs at home and may recommend tools and techniques to use at home, in the community, or in the classroom to help you thrive.
4. Monitor your progress. You can expect ongoing progress monitoring and communication to ensure you're achieving your short and long-term goals.

Get involved with local organizations, support groups, and professionals specializing in those hard of hearing. They can offer guidance, resources, and opportunities for your kiddo’s development. The more you know, the better you can support your child.

Here are some suggestions to get you started:

• Hands & Voices is a parent-driven, nonprofit organization that provides unbiased support, regarding communication methodology and technology, to families with deaf or hard of hearing children.
• Gallaudet University — Laurent Clerc National Deaf Education Center is a federally funded institution offering exemplary academic programs to deaf/HoH students. They provide early intervention services, sign language classes, and uniquely designed resources for deaf/HoH communities.
• Hearing Loss Association of America is a nonprofit organization with a mission to open the world of communication to people with hearing loss by providing information, education, support, and advocacy.

More research is needed to understand the link between sleep disturbance and autism, but there are a few possible reasons why autistic children have difficulty sleeping.2

• Co-occurring conditions. Coexisting medical conditions like ADHD, anxiety, or sleep apnea (when you stop breathing multiple times throughout the night), environmental allergies, and gastrointestinal upset (like constipation), can negatively impact sleep.
• Sensory sensitivities. Sensitivity to lights, sounds, and touch (think textures of blankets and clothing) can disrupt sleep.
• Medications. Often autistic children are prescribed medications to address various concerns like hyperactivity, anxiety, or aggression. Many of these medications may contribute to sleep problems. Adderall, Focalin, and Vyvanse are examples of stimulants prescribed to children on the spectrum to treat hyperactivity, impulsivity, and inattention, that can cause insomnia. Abilify and Risperdal (medications commonly prescribed for autistic children who have severe irritability, aggression, and/or self-injurious behaviors) may cause some children to become very sleepy.  However, each person responds differently to medications. (Pro tip: Keep channels of communication open with your doctor so that you can find the best medication to help your child that least affects sleep.)
• Neurobiological differences. Some research suggests autistic people may not produce the same levels of neurotransmitters (such as serotonin) or hormones (melatonin) important for sleep regulation, and may also experience disruption in circadian rhythms.3 In addition, low muscle tone can contribute to sleep-breathing disorders, such as sleep apnea, which also affects the quality of sleep and can lead to increased inattentive and hyperactive symptoms during the day. These behaviors, in turn, make it more challenging for the child to participate in therapies and activities. 

For more information, read our comprehensive sleep guide.