Tufts Medical Center

1. Use visual aids. You can use picture schedules, videos, social stories, and other visual aids to show your child what to expect.
2. Take your child for a practice visit. This can be the same as the orientation visit, or it can be a “dry run” of an appointment where the dentist doesn’t actually work on your child’s teeth yet.
3. Bring items to fulfill sensory needs. Bringing your child’s favorite fidgets and toys so they can play during the appointment will be helpful.
4. Reduce unnecessary stress before and after. Reduce demands by wearing comfortable clothes, getting lots of rest, eliminating unnecessary activities (like grocery shopping — order for pick up!), and doing the things that relax your child. Your child will be able to regulate better when every day stressors are kept at a minimum.

Yes, a psychiatrist is a good person to speak with regarding medication for your child. While you might have an idea of what might work for your child, it’s best to have a conversation with a medical professional, such as a psychiatrist. What works for one autistic child may not work for another, so consider your child’s individual needs and goals. 

If you’d like to explore prescription medications or supplements for your child, weigh your options and concerns with your child’s medical team and create a plan. Discuss developments and side effects with your child’s doctor and adjust as needed.

When you visit a neurologist, they’ll assess your child’s needs, run some tests (think imaging or EEG), and diagnose. From there, they’ll create a customized treatment plan. Medication, lifestyle tweaks, or maybe even a referral to another specialist could be on the table.

There unfortunately isn’t one test for all neurodevelopmental conditions. Most likely you will go into a visit to test one or two medical conditions. If you are looking for a comprehensive autism evaluation, developmental pediatricians, psychologists, or neuropsychologists are the preferred specialists who can diagnose autism.

No, neurologists focus mainly on non-surgical interventions. If your child needs surgery, neurologists might point you in the direction of a pediatric neurosurgeon.

The occupational therapy process includes an OT evaluation before care starts. Here are the four steps your family can expect when starting occupational therapy:

1. Complete OT evaluation. An occupational therapist first identifies your child’s strengths and needs through a thorough OT evaluation, also known as an OT assessment or screening. You’ll answer questions about your child’s skills, and your child will most likely demonstrate their skills via hands-on activities with the therapist. Evaluations can last 30 minutes to a few hours.
2. Approve OT plan. The therapist develops a care plan with individualized goals and customized interventions based on your child’s needs. You can also share any specific goals or concerns before approving the OT plan.
3. Start therapy sessions. The therapist works directly with your child and your family, using various strategies and exercises to systematically improve areas of limitations and to build upon a child’s strengths. Some exercises your child might participate in are animal walks, obstacle courses, and therapy swing activities. Your family may learn strategies for supporting your child’s individualized needs at home, such as ways of supporting emotional regulation and sensory processing. The therapist may also recommend tools and techniques to use at home, in the community, or in the classroom to help your child succeed.
4. Monitor your child’s progress. Parents and caregivers can expect ongoing progress monitoring and communication to ensure the child is achieving their short and long-term goals.

Once you find a quality physical therapist you want to work with, here are a few things you need to know:

• There will be an evaluation. First, you can expect an assessment to identify your child’s areas of strength and needs. A physical therapy evaluation usually lasts 30 minutes.
• You’ll review and approve the care plan. The physical therapist will create a care plan, also known as a plan of care (POC), outlining the goals and strategies. They will review this with you and your care team before moving forward with therapy sessions.
• Physical therapy sessions will be fun. PT with children is designed to be enjoyable. The therapist will use strategies and exercises based on your child’s needs. Exercises might involve playing on large stability balls, obstacle courses, movement equipment, stretches, and other hands-on activities.
• Expect home exercises. Physical therapists commonly assign exercises to work on at home. Doing these exercises with your child outside therapy sessions can improve your child’s overall progress.

Yes! Most providers offer physical therapy in their offices or a clinical setting, but many are offering at-home options. Virtual options have become more popular in recent years. You might facilitate care with the guidance of the physical therapist.

Pediatric physical therapy is considered safe and should not hurt. Autistic children spend their time in PT moving and exploring their environment. If you are concerned about your child experiencing pain during certain exercises, especially if they may struggle to communicate and advocate for modifications, speak with their physical therapist about your concerns.