The Down Syndrome Clinic at Prisma Health Children’s Hospital

The goal of speech therapy is to help your child communicate effectively with other people across all environments. This may take the form of using gestures, simple signs, verbal speech, and Augmentative and Alternative Communication (AAC).

Some other common things speech therapists can help with:

• Nonverbal skills, such as signs or gestures
• Forming speech in a clearer way
• Communicating thoughts and feelings clearly
• Understanding and responding to questions
• Discerning facial expressions and their corresponding emotions
• Noticing and understanding body language
• Feeding and swallowing
• Stuttering

Your pediatrician might be able to administer screenings, but most general doctors are not trained to formally diagnose autism. They might refer you to a qualified diagnostic clinician which include: 

• Developmental Pediatricians
• Child Psychologists
• Child Psychiatrists
• Pediatric Neurologists
• Pediatric Neuropsychologists

Your experience might look different depending on the type of clinician you choose. Many families prefer working with developmental pediatricians. Others might work with a psychiatrist or another specialist to get a different perspective.

A formal ASD diagnosis, or a medical diagnosis, helps you get the support your family needs, especially within the context of accessing medically necessary therapies and services.

• Insurance Coverage for Therapies: Medically necessary therapies for ASD are often covered by insurance including, but not limited to, speech therapy, ABA therapy, and occupational therapy. 
• Financial Support: A diagnosis is required when applying for social security or disability benefits. 
• Plan for Care: A diagnosis helps identify your child’s support needs. For example, your child might need to develop social communication and self-regulation skills.
• Future Research: The more data we gather through evaluations, the more we can improve services for autistic children and adults.

Check out Autism Diagnosis: The Complete Guide for Parents for more information.

The occupational therapy process includes an OT evaluation before care starts. Here are the four steps your family can expect when starting occupational therapy:

1. Complete OT evaluation. An occupational therapist first identifies your strengths and needs through a thorough OT evaluation, also known as an OT assessment or screening. You’ll answer questions about you your skills, and you will most likely demonstrate these skills via hands-on activities with the therapist. Evaluations can last 30 minutes to a couple hours.
2. Approve OT plan. The therapist develops a care plan with individualized goals and customized interventions based on your needs. You can also share any specific goals or concerns before approving the OT plan.
3. Start therapy sessions. The therapist works directly with you, using various strategies and exercises to systematically improve areas of limitations and to build upon your strengths. If there are others part of your care team, the therapist may teach strategies for supporting your individualized needs at home and may recommend tools and techniques to use at home, in the community, or in the classroom to help you thrive.
4. Monitor your progress. You can expect ongoing progress monitoring and communication to ensure you're achieving your short and long-term goals.

Yes, picky and selective eating is actually a quite common concern for children with autism. If you rolled your eyes looking at the steps above because your child with autism has never had a full day's serving of vegetables in their life, you are definitely not alone. As if getting kids to eat their veggies isn’t challenging enough, research shows children with autism have significantly more eating challenges than their peers who are not autistic.

In addition to sensory difficulties that can lead to a lot of anxiety with food, autistic children are 4x more likely to have gastrointestinal issues such as stomach pain and discomfort. This creates the perfect storm for extra extra picky eaters - and a lot of added obstacles and concerns for parents. 

The difficulties associated with autistic children and food can cause a wide range of concerns from children being underweight to overweight (overweight children can still be at risk for nutritional deficiencies!).  This can lead to slower than normal growth and nutritional deficiencies like low vitamin D and calcium levels. Even when given multivitamins, many children with autism are still found to have some of these nutritional deficiencies.

Here are some tips:

1. Keep to a schedule - setting schedules for meal and snack  time can help picky eaters build up their appetite throughout the day
2. Minimize distractions - removing distractions like screens and toys can help your child be more engaged at mealtime 
3. Approach new foods together - Make new foods less scary by trying them together. Touching and smelling the food together before tasting it 
4. Support choice & control - Allowing your child to pick which foods they eat will help them feel more in control 

For more tips, check out our guide for getting a complete diet.

It may not seem obvious, but eating is a complex behavior that involves perceptual, emotional, and cognitive processes. And we know that children with autism process things differently. While many of us look forward to things like our afternoon snack, it may be an activity that causes a lot of anxiety for your child.

Parents describe food selectivity being determined by a few of the following factors: texture (69%), appearance (58%), taste (45%), smell (36%), and temperature (22%). Uniform texture, bland and neutral color foods are reported to be overwhelmingly preferred by more than 90% of children with ASD.