The Center for Family & Lifespan Development

A formal ASD diagnosis, or a medical diagnosis, helps you get the support your family needs, especially within the context of accessing medically necessary therapies and services.

• Insurance Coverage for Therapies: Medically necessary therapies for ASD are often covered by insurance including, but not limited to, speech therapy, ABA therapy, and occupational therapy. 
• Financial Support: A diagnosis is required when applying for social security or disability benefits. 
• Plan for Care: A diagnosis helps identify your child’s support needs. For example, your child might need to develop social communication and self-regulation skills.
• Future Research: The more data we gather through evaluations, the more we can improve services for autistic children and adults.

Check out Autism Diagnosis: The Complete Guide for Parents for more information.

1 in 36 children is diagnosed with autism according to the latest reports.

Here are some reasons why:

• Medical professionals understand autism better. More doctors are trained to test for autism and other developmental and language delays.  
• The definition of autism has evolved in recent years which means that an autism diagnosis covers more conditions to help more people get the services they need.

For more information check out Common autism diagnosis questions: Answers from Dr. Melanie Hsu

Yes, but there is room for improvement. We don’t have a single, perfect diagnostic tool for autism and there are a lot of factors that contribute to an accurate diagnosis. There are a few “gold standards” that are used for diagnosis.

If you’re interested in understanding the non-verbal experience, we recommend watching The Reason I Jump. If you’re looking for a movie that can help your child understand their emotions, many neurodiverse families love Inside Out. Check out our autism-friendly movie guide here.

For both a scientific and personal look at autism, we recommend reading But You Don’t Look Autistic At All by Bianca Toeps. Check out our full book guide for more great reads.

Hero Elementary is great for the young ones. Songs for Littles is excellent for toddlers learning how to talk. And Ranking of Kings is a great option for anime and fantasy fans. See our full list of the best TV shows about autism and inclusion.

If you’re not sure where to start, this article lists 6 types of housing to be on the lookout for. Your child’s school and other parents are great resources to find out about potential options. Local groups, like your area’s Arc chapter, autism society, or special needs groups on social media, are good places to find resources as well. For additional help, consider working with a social worker and/or case manager.

This happens. The results of the school’s evaluation may be different than your child’s medical diagnosis. It’s also important to remember that school is NOT the final say on your child’s potential. They may offer very little support to your child, underestimate their abilities, or disagree with you on what support your child needs. You will probably need to advocate for the services and support you believe your child needs.