MILE SQUARE HEALTH CENTER - HUMBOLDT PARK

1. Use visual aids. You can use picture schedules, videos, social stories, and other visual aids to show your child what to expect.
2. Take your child for a practice visit. This can be the same as the orientation visit, or it can be a “dry run” of an appointment where the dentist doesn’t actually work on your child’s teeth yet.
3. Bring items to fulfill sensory needs. Bringing your child’s favorite fidgets and toys so they can play during the appointment will be helpful.
4. Reduce unnecessary stress before and after. Reduce demands by wearing comfortable clothes, getting lots of rest, eliminating unnecessary activities (like grocery shopping — order for pick up!), and doing the things that relax your child. Your child will be able to regulate better when every day stressors are kept at a minimum.

Your pediatrician might be able to administer screenings, but most general doctors are not trained to formally diagnose autism. They might refer you to a qualified diagnostic clinician which include: 

• Developmental Pediatricians
• Child Psychologists
• Child Psychiatrists
• Pediatric Neurologists
• Pediatric Neuropsychologists

Your experience might look different depending on the type of clinician you choose. Many families prefer working with developmental pediatricians. Others might work with a psychiatrist or another specialist to get a different perspective.

A formal ASD diagnosis, or a medical diagnosis, helps you get the support your family needs, especially within the context of accessing medically necessary therapies and services.

• Insurance Coverage for Therapies: Medically necessary therapies for ASD are often covered by insurance including, but not limited to, speech therapy, ABA therapy, and occupational therapy. 
• Financial Support: A diagnosis is required when applying for social security or disability benefits. 
• Plan for Care: A diagnosis helps identify your child’s support needs. For example, your child might need to develop social communication and self-regulation skills.
• Future Research: The more data we gather through evaluations, the more we can improve services for autistic children and adults.

Check out Autism Diagnosis: The Complete Guide for Parents for more information.

Once you find a quality physical therapist you want to work with, here are a few things you need to know:

• There will be an evaluation. First, you can expect an assessment to identify your child’s areas of strength and needs. A physical therapy evaluation usually lasts 30 minutes.
• You’ll review and approve the care plan. The physical therapist will create a care plan, also known as a plan of care (POC), outlining the goals and strategies. They will review this with you and your care team before moving forward with therapy sessions.
• Physical therapy sessions will be fun. PT with children is designed to be enjoyable. The therapist will use strategies and exercises based on your child’s needs. Exercises might involve playing on large stability balls, obstacle courses, movement equipment, stretches, and other hands-on activities.
• Expect home exercises. Physical therapists commonly assign exercises to work on at home. Doing these exercises with your child outside therapy sessions can improve your child’s overall progress.

Yes! Most providers offer physical therapy in their offices or a clinical setting, but many are offering at-home options. Virtual options have become more popular in recent years. You might facilitate care with the guidance of the physical therapist.

Pediatric physical therapy is considered safe and should not hurt. Autistic children spend their time in PT moving and exploring their environment. If you are concerned about your child experiencing pain during certain exercises, especially if they may struggle to communicate and advocate for modifications, speak with their physical therapist about your concerns.

Yes, picky and selective eating is actually a quite common concern for children with autism. If you rolled your eyes looking at the steps above because your child with autism has never had a full day's serving of vegetables in their life, you are definitely not alone. As if getting kids to eat their veggies isn’t challenging enough, research shows children with autism have significantly more eating challenges than their peers who are not autistic.

In addition to sensory difficulties that can lead to a lot of anxiety with food, autistic children are 4x more likely to have gastrointestinal issues such as stomach pain and discomfort. This creates the perfect storm for extra extra picky eaters - and a lot of added obstacles and concerns for parents. 

The difficulties associated with autistic children and food can cause a wide range of concerns from children being underweight to overweight (overweight children can still be at risk for nutritional deficiencies!).  This can lead to slower than normal growth and nutritional deficiencies like low vitamin D and calcium levels. Even when given multivitamins, many children with autism are still found to have some of these nutritional deficiencies.

Here are some tips:

1. Keep to a schedule - setting schedules for meal and snack  time can help picky eaters build up their appetite throughout the day
2. Minimize distractions - removing distractions like screens and toys can help your child be more engaged at mealtime 
3. Approach new foods together - Make new foods less scary by trying them together. Touching and smelling the food together before tasting it 
4. Support choice & control - Allowing your child to pick which foods they eat will help them feel more in control 

For more tips, check out our guide for getting a complete diet.