MassGeneral for Children - Lurie Center for Autism

A formal ASD diagnosis, or a medical diagnosis, helps you get the support your family needs, especially within the context of accessing medically necessary therapies and services.

• Insurance Coverage for Therapies: Medically necessary therapies for ASD are often covered by insurance including, but not limited to, speech therapy, ABA therapy, and occupational therapy. 
• Financial Support: A diagnosis is required when applying for social security or disability benefits. 
• Plan for Care: A diagnosis helps identify your child’s support needs. For example, your child might need to develop social communication and self-regulation skills.
• Future Research: The more data we gather through evaluations, the more we can improve services for autistic children and adults.

Check out Autism Diagnosis: The Complete Guide for Parents for more information.

1 in 36 children is diagnosed with autism according to the latest reports.

Here are some reasons why:

• Medical professionals understand autism better. More doctors are trained to test for autism and other developmental and language delays.  
• The definition of autism has evolved in recent years which means that an autism diagnosis covers more conditions to help more people get the services they need.

For more information check out Common autism diagnosis questions: Answers from Dr. Melanie Hsu

Yes, but there is room for improvement. We don’t have a single, perfect diagnostic tool for autism and there are a lot of factors that contribute to an accurate diagnosis. There are a few “gold standards” that are used for diagnosis.

The goal of speech therapy is to help your child communicate effectively with other people across all environments. This may take the form of using gestures, simple signs, verbal speech, and Augmentative and Alternative Communication (AAC).

Some other common things speech therapists can help with:

• Nonverbal skills, such as signs or gestures
• Forming speech in a clearer way
• Communicating thoughts and feelings clearly
• Understanding and responding to questions
• Discerning facial expressions and their corresponding emotions
• Noticing and understanding body language
• Feeding and swallowing
• Stuttering

When you visit a neurologist, they’ll assess your child’s needs, run some tests (think imaging or EEG), and diagnose. From there, they’ll create a customized treatment plan. Medication, lifestyle tweaks, or maybe even a referral to another specialist could be on the table.

There unfortunately isn’t one test for all neurodevelopmental conditions. Most likely you will go into a visit to test one or two medical conditions. If you are looking for a comprehensive autism evaluation, developmental pediatricians, psychologists, or neuropsychologists are the preferred specialists who can diagnose autism.

No, neurologists focus mainly on non-surgical interventions. If your child needs surgery, neurologists might point you in the direction of a pediatric neurosurgeon.

A mental health professional (such as a pediatric psychologist) can help concerns around anxiety, depression, trauma, eating disorders, ADHD, behavioral challenges, OCD, grief/loss.

The occupational therapy process includes an OT evaluation before care starts. Here are the four steps your family can expect when starting occupational therapy:

1. Complete OT evaluation. An occupational therapist first identifies your strengths and needs through a thorough OT evaluation, also known as an OT assessment or screening. You’ll answer questions about you your skills, and you will most likely demonstrate these skills via hands-on activities with the therapist. Evaluations can last 30 minutes to a couple hours.
2. Approve OT plan. The therapist develops a care plan with individualized goals and customized interventions based on your needs. You can also share any specific goals or concerns before approving the OT plan.
3. Start therapy sessions. The therapist works directly with you, using various strategies and exercises to systematically improve areas of limitations and to build upon your strengths. If there are others part of your care team, the therapist may teach strategies for supporting your individualized needs at home and may recommend tools and techniques to use at home, in the community, or in the classroom to help you thrive.
4. Monitor your progress. You can expect ongoing progress monitoring and communication to ensure you're achieving your short and long-term goals.