Gillette Children's Specialty Healthcare - St. Paul Campus

I have had an overall terrible experience as an adult attending a hospital meant for children with disabilities. I think its important that families are aware that vitals arent routinely taken. This was never shared with me. My X-ray orders are often incorrect and this is also brushed off. My discharge was terrible they never set me up for success. I was told my discharge meds were all Im getting so space it out. Its like 12 pain pills and Im breaking my leg 17 times per day.. They just think youre an oxy fein uncontrolled drug addict. Gillettes takes pride in poor communication and having poor attention to detail. Almost every serious concern Ive raised has been met with excuses. Not to mention that they Made me stand up less then 24hrs after surgery on 2 broken legs. My left leg snapped and they brushed that off. Concerns of pain are not taken serious. Youll be told you have anxiety not pain make no mistake. My doctor always feels the need to tell me how I feel because I the patient am apparently incapable of doing so. This hospital almost killed me and takes 0 accountability for everything theyve done. I suffered over 30 blood clotspulmonary embolismspulmonary infractions hypoxia. Me being alive is nothing short of a miracle. Understanding this I was upset and the doctor got in my face and started screaming at me because he was upset that 3 weeks after almost dying I was still crying about almost dying. He was In my face yelling at me with his hands and proceeded to tell me he was done with me that hes gonna be sending me to a different hospital. When I implied youre doing all this because Im upset about my 30 blood clots he pointed at me and told me to grow up twice. I was yelled at with the door open and with the door closed staff are passing by and Im meeting eyes with them patient relations is outside hearing me get yelled at and this doctor slammed the door. No one intervened on this doctor yelling at me. Mind you another doctor is in the room as well. The doctor going off on me let me know that I misunderstood he did not slam the door they close hard. I want to re emphasize that no one intervened while witnessing their star doctor yell at me and tell me off.I went in for bone deformity and had very complex surgeries done January 9. I had 2 osteotomies at the same time. Right leg straight forward osteotomy left leg hexapod fixator. I would break my left leg at a minimum of 17 times per day. For 2 months. I was never in denial that this was going to be easy. But I was unaware that my doctor would care so little about my life. I almost died February 4 and it makes me so upset because This was preventable. I emailed them 5 days leading up this life altering event Saw them 3 days before I ended up in the ER. Very disappointed to understand after the fact that I was emailing them telling them I had deep vein thrombosis without knowing. A simple blood test and vitals could have alerted them but apparently its my fault because I was just always in severe pain that they were unable to distinguish a difference. While my bones are now straight its like at what cost though I almost died. Had to have emergency surgery because of the blood clots pulmonary embolisms now need to have another surgery to have my filter removed. 2 added surgeries due to such negligence. A 6 year old was almost left motherless due to this unacceptable standard of care and neglect . I am left with trauma that cant be undone. I now suffer from depression anxiety and ptsd alike. Its very hard to enjoy things I should be celebrating like Mothers Day because all I can think about is this negligence from the doctors and hospital alike. They almost took away from me being able to see mothers day the worst part about it is my son now has the trauma of seeing his mom broken physically emotionally. My innocent son is unaware that he almost lost his mom and I just live with the hurtful perspective of almost leaving this world and never having a last goodbye . This hospital broke me in every way possible.

Gillette Childrens Hospital came so highly recommended I work through the logistics of getting my son from Texas to Minnesota to have their team perform the corrective surgeries he need on his legs. Everything up till the time we went home from the third trip was awesome. Everyone was so helpful and made every trip to their facility as painless as possible.Within a week after the casts were removal their rehab team had my son up walking with straight legs. After getting home he continued to improve to the point he could stand without hold onto any thing for 9 minutes. As soon as he was able we arranged for Physical Therapy. This is where the issues started. Had I known about this problem I would have done things differently.I asked local therapist if they would be able to help me son after explaining the surgeries that he had been through. Every therapist I asked said that they would be able help me son. This was far from the truth. The Therapist at Gillette understood the requirements that are need to continue the development and rehab for a patient that had the surgeries that my son had. They even put together a custom booklet of what was exercises were required to continue rehab. but offer no form of continued feedback of progress.I feel the breakdown occurred after we left the hospital for the last time. If there had been a long term support team that would contact us once every couple of weeks at first then tapper off to once a month for the first year would have ensured that all the work that went into my son to fix his legs would not go to waste.I did try to contact Gillette and explain the issues we were having. The PR lady that I was directed to was sweet but basically useless and did nothing to help with the fact that the benefits of the surgery were lost because of this lack of follow through. I never hear back from her.The reason I am writing this rating is to hopefully aid people coming from out of state or country to be aware of this issue and to push Gillette to provide continued support after the surgery is completed and the patient goes home.It hurts to think about how much effort was put into getting the surgery to happen and in the end there being no positive results from that effort. My sons legs are as crooked or more now then they were before the surgery. If you live to where to can continue the support of the Gillette rehab team after the surgery this is the best place in the US to have corrective surgery for crooked Cerebral Palsy legsI hope Gillette will consider adding long term remote rehab support to aid people who can not come back to the Gillette team for continued support.

Took them 3 months after referral was sent to get contacted. By contacted I mean they sent me a text to say call us to set up an appointment. Now we got a text saying her appt was cancelled and to call to reschedule. Absolute mess They are thebonly clinic that can deal eith this issue otherwise I would NEVER use them

My daughter 4 years old dislocated her elbow from a fall at the playground. We headed to twin cities orthopedic urgent care and were referred to Gillette hospital for surgery.Dr. Bohn yes pronounced bone was SO great with our daughter She got put to sleep and Dr. Bohn was able to get her arm popped back into place without invasive open surgery.They also got her an American girl doll who also had a purple cast just like her Highly recommend Gillette for kidsThey were SO good with her Princess stickers a Disney bedtime book lip smackers chap stick scents to choose from for the anesthesia maskjust an unbelievable amount of care and organization they put into her.Thank you all nurses anesthesiologist and Dr. Bohn for putting my daughters care as top priority and putting effort into all the little details You all really know how to work with children - you truly have a great thing going

We love seeing Laura Tillman. Shes been amazing working with my kids hips. My son was in a brace and both my kids have hip issues due to being born breech presentation. Ive been amazed with the way shes helped us along our journey.

We are extremely disappointed with our experience at Gillette.My daughter was referred to Gillette by her pediatrician for hip dysplasia. While we were there getting some ultrasounds I had to change her diaper beforehand. The tech leaned over the table to stare at my daughters private parts. When I asked her to please not look while Im changing the diaper she was put off and irritated by my request. She was rude and not friendly at all.The billing had been OUTRAGEOUS. We received a facility fee of 650. That is outside the cost of all the care. ONE appointment after insurance is almost 1500. I called the billing department to get insight to what specifically we were billed for. During the conversation the person on the other line laughed at me while I was expressing my concerns that we were billed for time we were not there.We have been assigned to a client representative who has been very hard to get ahold of. I have gone over a month at a time without hearing from her and only heard back after calling to check in. And after all that her answer has been we dont have an answer yet.The running of Gillettes billing department and client care is nothing short of a joke. Completely disorganized and unknowledgeable. They have not been able to give me specific answers.We will not be back to Gillette and we have recommended to others and will continue to recommend that they stay away.

Dont ever try and call here. The lady I spoke to was awful and extremely rude and short. She should find a different job where she does not interact with people. Because of this interaction alone I would never bring my children here for care.

My son started going here for 4 therapies speech feeding OT PT and the services are great but dear god PLEASE get more people to answer your phones. I dont have an extra hour to wait every time I need to call which is often considering how many services my son receives Every time Ive had to call its been at least a half hour wait sometimes up to 1.5 hours just to reach the scheduling line. Im literally begging you - please hire more people to answer your phones.

My daughter had a spinal fusion almost a month ago. Best experience possible during our hospital stay. Highly recommend gillette childrens and Dr. Beauchamp and his team.Thank you to everyone that gave my daughter a better overall quality of life.

Gillette is the best place for pediatric comprehensive healthcare. They have an excellent team approach and the staff is very knowledgeable and...

I wish I could give this place zero stars.Not only was our baby was misdiagnosed as having hip dysplasia but they sent us over to plastics to have our babys head shape evaluated mid-visit. Charged 3900 for a wrong diagnosis brace that didnt even correctly fit our baby and for someone to push on our babys skull and say I dont know why they sent you over here. Your baby seems perfectly fine. But we can go ahead and fit her with a helmet since the brace might cause her to develop a flat spot in the future.We were also told that the brace may cause her hip bones to die since they didnt have one that fit her properly and not to worry as its an easy operation to fix. The easy operation the PA was referring to is full leg amputations these people are not real doctors and they only care about how much money they can squeeze you for.They also tried diagnosing our baby with some severe illness because of a prominent stork bite even though they arent dermatologists. And then they tried diagnosing our baby with a developmental disorder simply because our kiddo hates being in wet diapers.Please please take your baby or child to Mayo Clinic. Its worth the drive for the quality of care over this place. Mayo also said the quality of ultrasound we received from Gillette was so poor that no doctor would or should make a diagnosis based off of it. Stay away this place is scary.

Research your expected cost in advance of schedulingMy daughter recently broke her arm and required surgery prior to putting a cast on. We had a good...

the afo -foot orthoses braces- pictured above with the rough and ragged edges were designed to just protect the feet and thus intentionally devoid...